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Privacy Policy


Beyond Cancer (“we”) promises to respect any personal data you share with us and keep it safe.  We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect. 

Developing a better understanding of our supporters through their personal data allows us make better decisions and fundraise more efficiently.  Our marketing communications include information about the work of Beyond Cancer and news about upcoming events.

Who we are

Beyond Cancer is registered as a charity in England and Wales (registered charity number 1147420).  Beyond Cancer Charity was established by a group of mainly African/Caribbean women three of whom were diagnosed with breast cancer in 2010.  

The Charity is diverse and through members of its board and volunteers it provides support and a listening ear to anyone in Leeds during their stages of a cancer diagnosis, appointments and treatment. 

Funds raised by Beyond Cancer or donated to us are primarily gifted to cancer charities and the Beyond Cancer Special Wishes Programme.  A small proportion of these funds are retained for the running of the charity.

What personal data we collect and how we use it

The type and quantity of information we collect and how we use it depends on why you are providing it. 



If you support us, for example make a donation, volunteer, register to fundraise,  sign up for an event or newsletter, we will usually collect:

  • Your name

  • Your contact details i.e. email address, telephone number, home address

  • Your date of birth


Where it is appropriate we may also ask for:

  • Information relating to your health (for example if you are taking part in a high risk event) 

We will mainly use your data to:

  • Provide you with the services or information you asked for

  • Administer your donation or support your fundraising

  • Keep a record of your relationship with us

  • Ensure we know how you prefer to be contacted

  • Provide you with information about our work or our activities

  • Understand how we can improve our services or information

  • For internal record keeping, such as the management of feedback or complaints; 


Sharing your story

Some people choose to tell us about their experiences with cancer to help further our work.  They may take on a role as an Ambassador or Volunteer at our events. This may include them sharing sensitive information related to their health and family life in addition to their biographical and contact information. 

We use some of the information provided, including gender, ethnicity or the type of cancer people have experience with, to tailor our support and activities.  We will also monitor the types of people who are involved to ensure that the views we hear are representative of all people affected by cancer.

If we have the explicit and informed consent of the individuals, or their parent or guardian if they are under 18, this information may be used in publicity by us in materials promoting our campaigning and fundraising work, or in documents such as our annual report or newsletter.


Support for individuals affected by Cancer

We provide support to individuals affected by Cancer, and collect personal data in order to provide appropriate support and services.  Beyond Cancer may collect sensitive personal data about your health when you contact us by email, telephone or in person.  This information will be used to answer your questions and give advice or guidance.  We may also collect and retain your information if you send feedback about our services or make a complaint. 


Direct Marketing

With your consent, we will contact you to let you know about the progress we are making and to ask for donations or other support.  Occasionally, we may include information from partner organisations or organisations who support us in these communications.  We make it easy for you to tell us how you want us to communicate, in a way that suits you. If you don’t want to hear from us, just let us know when you provide your data or contact us at

We do not share personal details to third parties for the purpose of marketing.  But, if we run an event in partnership with another named organisation your details may need to be shared. We will be very clear what will happen to your data when you register.

The accuracy of your information

We aim to ensure that all information we hold about you is accurate and, where necessary, kept up to date. If any of the information we hold about you is inaccurate and either you advise us or we become otherwise aware, we will ensure it is amended and updated as soon as possible. 


Storing your information

We will keep your information for as long as required to enable us to operate our services but we will not keep your information for any longer than is necessary. When we no longer need to retain your information we will ensure it is securely disposed of, at the appropriate time. 


The Beyond Cancer website may include links to other sites, not owned or managed by us. We cannot be held responsible for the privacy of information collected by websites not managed by us. 


Changes to this policy

We may change our privacy policy from time to time so please check back periodically.  

This Privacy Policy was last updated April 2018.

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